Revisiting Masculinity: The father’s journey with autism
by Robert Naseef, Ph.D.
When my son was born in November 1979, I jumped for joy. When he was diagnosed with autism 4 years later, I thought my head was going to explode. I couldn’t get the word autism out of my mouth for months.
In
general, it is harder for men to talk about problems than women. Women seem
able to talk about problems and find comfort without needing to fix them. Of
course, women do want to fix problems. As for men, when we can't fix something,
we don't want to talk about it—and this is a factor in male depression and a problem
in relationships.
As
Nelson Mandela wrote, “A boy may cry; a man conceals his pain.” Boys are still taught at a young age to feel
ashamed of their tender feelings, especially their gentleness, caring,
vulnerability, and fear. What is
acceptable is showing their tough, action-oriented side along with physical
strength. All emotions save anger are to
be hidden even from themselves. So what’s a man to do when his child is diagnosed? How do
you handle that choked up feeling? Men
tend to withdraw and cry on the inside. On
the outside we may be grumpy and irritable, but on the inside we are hurting. This
is part of the secret life of men raising a child with autism.
I
wanted to be a better version of my father when I held my son Tariq for the
first time. I looked at my son and saw
myself, only better. His diagnosis of
classic autism shattered that reflected vision, like a broken mirror. There were no words.
Asking a male how he feels usually evokes an
automatic “I don’t know.” What helps men express themselves when experiencing a
broken mirror with an autistic child, 80% of whom are boys? Try “Guy talk” such as:
• What’s it like for you? (Curiosity
works better than empathy)
• Tell me more.
• I need to know to be closer to you as
your / wife/ friend/ brother, etc.
• Your child needs you.
• Let’s figure out a plan.
Men
respond to making an action plan. This
is a positive part of the male code and not outmoded. Our families need us to be present, and as
fathers we are yearning for connection but lost about where to start with a
child who is so different.
To
find clues, I ask men about their warmest memories of their fathers. Almost without exception they recount doing
things with their dads such as taking a ride or a walk, building or fixing
stuff, going on errands, cleaning up the yard, watching TV, or throwing a ball
around.
The
essence of every good memory tends to be doing things together. This fits the male mode of being. It’s not everything. But it’s a good start and it works every
day. We still need to get up to speed listening
better and expressing ourselves. We’re a
work in progress.